Stacey & Rhys
Tetrology of fallot and Noonans syndrome
This is Rhys Jack Clifford Dean. He is 6months old now and been in hospital all of his life. He has Tetrology of Fallot and Noonans syndrome he had by shunt at 4 weeks old. His full repair was on the 14th July which he then got right heart failure and gut failure. So he got rushed for his 3rd open heart surgery to fenstrate the vsd. Which he has made a great recovery. Along with TOF he has narrowing of the pulmonary arteries and vranch pulmonary arteries. Which have not grown they feel that they wont and have been given life limiting.