Stephanie was diagnosed with a chd at 20 week scan. Once she was born and were able to do a scan on her rather than through me they told us it was more complicated than they first thought.
Diagnoses- tetralogy of fall of with disconnected lpa, dilated right ventricle with free pulmonary regurgitation, hypoplastic right pulmonary artery.
At 10 days old she went into heart failure and after finally getting a surgeon to operate after others had said no she was too wee not strong enough the op was too big and complicated she went for her first open heart surgery.
At 7 weeks old was in theatre for 13 1/2 hours and fought so hard to stay with us.
She has had 3 since then the most recent being end of June 2017 and will need many more as it can't be cured only kept stable with surgery.
She surprises us and doctors and surgeons every time with the fight she has in her and always manages a smile. Stephanie is truly our little braveheart so proud of her fight and courage everyday she is our heart hero .